Dissociative Seizures
Dissociative Seizures - also known as Non epileptic attack disorder, and can often be difficult to diagnose, often taking several years, and can often be misdiagnosed as epilepsy. This can often be distressing for the individual to find out that they was misdiagnosed, and there is no medical treatment for their illness.
In 2021, after several years of having seizures in my sleep, and often dissociating during the day. My seizures then escalated to collapsing to the ground in places like supermarkets, and shops, and my partner having to support my head, so I did not cause myself injury. My case was then escalated to the neurological department, due to frequency, as by this stage I was having two to three seizures per day. I underwent MRI scans, blood tests, and physical tests, and I was diagnosed with dissociative seizures, otherwise known as non epileptic attack disorder. It was accepted that due to childhood trauma, mixed with current mental health, my mind and body, were trying to put me in temporary 'time out's' by placing me in a seizure state.
It can be incredibly tough receiving this diagnosis, as there is often thoughts of shame, that you feel people will think you are putting it on, or that it is not a real health condition. This is not true. Dissociative seizures can be just as disruptive, frighting and unsettling as an epileptic attack. There is also still the risk to your safety such as hitting your head, or causing bruising to your body during an attack, although an ambulance does not need to be called, unless serious injury occurs, or you lose consciousness.
You will need support from your family, friends, and work when you receive your diagnosis, so that you can come up with an action plan for when attacks happen, and how to improve recovery time.
So why do they happen?
The brain normally works by sending an electric message along the nerve fibre, to carry out tasks. However, during an epileptic attack, the brain produces abnormal electrical messages, that then lead to the outside appearance and behaviour to look abnormal. Whilst both epileptic and dissociative seizures look similar, there are no abnormal currents when it comes to dissociative seizures. This is how the brain responds to both outside and inside threats, which can include, memories, emotions, sensations, sounds, smells and objects, that have a link to a difficult moment in the past. They can also happen when a person feels calm and relaxed, and with these, a person may not even be aware they are having them.
For every 1000,000 people, 15 out of 30 people will have dissociative seizures, so you are not alone in your diagnosis, and you do not need to have a big traumatic event to go on to develop these.
Signs and symptoms of dissociative seizures, include the following;
and many more
Dissociative seizures come with some basic first aid, and this is what someone should do, if they witness you having a seizure;
Do
Dont
It is usual for dissociative seizures to go on longer that epilepsy seizures.
Whilst dissociative seizures are not treated in the same way as epilepsy, and are not treated with anti-epileptic drugs, there is some treatment that can be given. This can be in the form of the following;
To find more information on talking therapy, you can access this on the NHS website;
There could be a waiting list for these services within your area, so the sooner you make contact, the better.
Some of the common causes of dissociative seizures is that of stress, anxiety and post traumatic stress disorder, also known as PTSD. Using things such as mindfulness, meditation and learning how your own personal reactions to the above, will help you manage your seizures much better.
Dealing with your stress management and getting the correct amount of sleep your body needs, are two of the most important things, to help manage your seizures.
The following NHS website has information on stress;
https://www.nhs.uk/mental-health/feelings-symptoms-behaviours/feelings-and-symptoms/stress/
The most important thing that must be remembered is, you did not bring on the attacks, but you can use tools to help you manage the duration and frequency of your seizures.
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